Von Willebrand's Disease (VWD) - Online Support Group

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

An interesting topic which has members have been discussing on our FB page

Started by Nel in General yesterday. 0 Replies

What are the chances of passing von Willebrand's disease on to my daughter?Reply by Suzanne DixonpediatricianThe condition you have, von Willebrand's disease, is an inherited disorder that alters the blood's ability to clot. It's usually inherited…Continue

Where are my fellow Type 3 Severe folks at???

Started by BondGirl007 in General. Last reply by Johntheelder Feb 24. 11 Replies

Hey all! :)Just checking in to see how many Type 3 vWd's are on this site???  I love meeting other severe peeps and sharing our horror stories! :)  Comment on this discussion if you are Type 3 <3Thanks,StacyContinue

Tags: III, vwd, 3, type

Frustrated Parent

Started by lisa in General. Last reply by suzee Feb 24. 11 Replies

My daughter was dignosted with VWD when she was 5 years old she is now 7.  She has always been full of life and energy.  Over the past 5/6 weeks she has not been herself.  It started with her not running around like a crazy kid. I put it off as her…Continue

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Latest Activity

THERESA COLE liked Nel's discussion An interesting topic which has members have been discussing on our FB page
yesterday

Moderator
Nel posted a discussion

An interesting topic which has been being discussed on our FB page

What are the chances of passing von Willebrand's disease on to my daughter?Reply by Suzanne…See More
yesterday

Moderator
dancermom's group was featured
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Parents of Kids with VWD

This is a groups for our Parents, to discuss parenting kids with VWDSee More
Tuesday

Moderator
dancermom liked Nel's discussion NOW stands for National Outreach for von Willebrand and this was a first rate conference. If you know of such an event in your area why not share it with all of us.
Tuesday

Moderator
Nel posted a discussion
Sunday

Moderator
Johntheelder replied to BondGirl007's discussion Where are my fellow Type 3 Severe folks at???
"Yea!! more good news from fellow type IIIs! I continue to suffer from great health and great CBC.…"
Feb 24
suzee replied to lisa's discussion Frustrated Parent
"Lisa, re your comment "It took about 6/8 months before we got it to show up on her blood…"
Feb 24
Bluzdoctor liked BondGirl007's discussion Where are my fellow Type 3 Severe folks at???
Feb 23

Top Content 

1 Frustrated Parent

Frustrated Parent

Posted by lisa on February 17, 2015

2 Additional questions from a "newbie"

Additional questions from a "newbie"

Posted by Gilligan Girl on January 19, 2015

3 Tonsils bleeding...ugh

Tonsils bleeding...ugh

Posted by BondGirl007 on February 18, 2015

 
 
 

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Blog Posts

coumadin

Posted by Rebecca on December 22, 2014 at 12:30pm 4 Comments

  I need to know if anyone has heard about  warafin Coumadin treatment  .. and if it is potentially dangerous for VWD patients.. ??  It makes sense logically in my mind that would it would be dangerous but when it was mentioned to the…

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