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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
Hello everyone!So a couple of people suggested I start a discussion to introduce myself.My name is Amanda and I just moved to Atlanta three weeks ago! I'm currently in the Genetic Counseling Training Program at Emory and I'm loving it. Coming from a…Continue
I have been noticing dark red circles under my eyes.. and not sure if this is attributed to my VWB Type I. It almost looks like brusing. I've never had this but I have noticed it the last six months.. I eat pretty healthy. So I'm not sure. Has…Continue
My 17 year old daughter was diagnosed with von willebrands disease last week. We are both happy to finally have a diagnoses, but feeling a bit overwhelmed. We don't know which type she has yet. We go back in August for more testing. We actually got…Continue
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The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.
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Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.