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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

Happy Thanksgiving Day!

Started by Nel in General. Last reply by Nel 22 hours ago. 2 Replies

For those of you across the water in the US and all who celebrate Thanksgiving Day, I hope you have a brilliant day and don't have to work too hard. In the midst of difficult times we can all acknowledge the good things in our lives.With very best…Continue

Anyone else on here that have kids diagnosed with VWD? I would like to hear your story on how they were diagnosed.

Started by DeAnn in General. Last reply by dancermom on Tuesday. 2 Replies

My 3yr old last April woke up vomiting blood at 3 o'clock in the morning. I took him to the Blair E. Batson children's hospital in Jackson, MS. His blood pressure was so high and so was his fever. They checked inside of his stomach and saw nothing…Continue

How is Everyone?

Started by Nel in General. Last reply by Karl Nov 22. 1 Reply

It's been awhile since we have heard from some of you. Now is a good time to check in, say hello to our newer members, and tell us how you are and what is on your minds. We hope to hear from you soon.

What Have You Done for Fun Lately? (from my good friend SK)

Started by dancermom in General. Last reply by SK Nov 21. 3 Replies

This is one ingredient of living that we don't want to leave out! No matter what, we need to always have some fun times, they are simply good for our soul!So tell us, what have you done for fun?Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

Disclaimer:

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity


Moderator
Nel replied to Nel's discussion Happy Thanksgiving Day!
"It all sounds wonderful Jill! Just an ordinary, grey damp London day today but Christmas is just…"
22 hours ago
Scott Orn left a comment for cak0920
"Hi Cak -  Huge welcome to the community! This is a great place! One tip, if you have specific…"
yesterday
Bleeder Girl replied to Nel's discussion Happy Thanksgiving Day!
"Thank you, Nel! It is a wonderful day, full of family and friends and great food -- all of which I…"
yesterday

Moderator
Nel posted a discussion

Happy Thanksgiving Day!

For those of you across the water in the US and all who celebrate Thanksgiving Day, I hope you have…See More
yesterday

Moderator
Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - November 2014 Issue

Just the Stats: Communities: 38 Friends: 44,000+Gratitude. Thank you. Gratzie. Danke. Tak.…See More
Wednesday

Moderator
Johntheelder left a comment for cak0920
"Welcome aboard, Cak! Lots of people with lots of experiences to share here. Feel free to ask other…"
Wednesday

Moderator
Nel left a comment for cak0920
"Hello cak0920 and welcome to the group. I am glad that you have a diagnosis at last and an…"
Wednesday
SK left a comment for cak0920
"Welcome cak, good to have you with us! Please join in and get to know everyone!"
Wednesday

Top Content 

1 Von Willebrands affecting joints?

Von Willebrands affecting joints?

Added by Ksharman777 on November 10, 2014

2 Frustration

Frustration

Posted by Perth Mum on November 3, 2014

3 Wow -- are artificial platelets in our future?

Wow -- are artificial platelets in our future?

Posted by dancermom on November 8, 2014

 
 
 

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Blog Posts

Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 10:16am 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+

GratitudeThank…
Continue

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