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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

Son has really black eyes is tired and has pain. Some advice please.

Started by Ashmac in General. Last reply by Ashmac Oct 17. 10 Replies

Hi there. My son who has type 2 vwd just recently diagnosed has been complaining of a sore ankle for months now on and off and now is complaining of shoulder pain too. He says sometimes it's unbearable and then other days nothing. And he has also…Continue

Where are my fellow Type 3 Severe folks at???

Started by BondGirl007 in General. Last reply by Johntheelder Oct 15. 6 Replies

Hey all! :)Just checking in to see how many Type 3 vWd's are on this site???  I love meeting other severe peeps and sharing our horror stories! :)  Comment on this discussion if you are Type 3 <3Thanks,StacyContinue

Tags: III, vwd, 3, type

Pain Research News

Started by dkel9307 in General Oct 9. 0 Replies

Hi EveryoneOne of our great Moderators (Mads) on the Living With Erythromelalgia site came up with a great idea that we thought was worth sharing across the board.I know some of you are not chronically ill, or in chronic pain, but chances are you…Continue

Avoiding Scammers and Spammers

Started by dkel9307 in General Oct 8. 0 Replies

Hi EveryoneAt times, we have problems with scammers and spammers, and the problem is growing as our communities grow.Hence, I thought I would share a notice that Red Lawhern, Lead Moderator for our Trigeminal Neuralgia Network just posted to his…Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

Disclaimer:

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity


Moderator
Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - October 2014 Issue

Just the Stats: Communities: 38 Friends: 43,500+Connecting to others in a similar circumstance is…See More
13 hours ago

Moderator
Johntheelder left a comment for Ksharman777
"Hi Ksharman777! Welcome aboard! I have been diagnosed a type III vWD (acquired) which was…"
Monday

Moderator
dkel9307 left a comment for Ksharman777
"Hi, Ksharman777!  Welcome…"
Oct 19
Scott Orn left a comment for Ksharman777
"Hi Ksharman -  Huge welcome to the community! This is a great place! One tip, if you have…"
Oct 19
Ksharman777 is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Oct 19
SK and Debbie Margolin are now friends
Oct 19

Moderator
dkel9307 left a comment for twiinkleyes
"Happy Birthday, twiinkleyes!  May the year ahead be your best-ever.  Kind…"
Oct 18
Ashmac replied to Ashmac's discussion Son has really black eyes is tired and has pain. Some advice please.
"When you say factor. What does that kean and entail? X"
Oct 17
 
 
 

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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:42am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

Continue

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