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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
What are the chances of passing von Willebrand's disease on to my daughter?Reply by Suzanne DixonpediatricianThe condition you have, von Willebrand's disease, is an inherited disorder that alters the blood's ability to clot. It's usually inherited…Continue
NOW is a national educational conference for individuals and families…Continue
Hey all! :)Just checking in to see how many Type 3 vWd's are on this site??? I love meeting other severe peeps and sharing our horror stories! :) Comment on this discussion if you are Type 3 <3Thanks,StacyContinue
My daughter was dignosted with VWD when she was 5 years old she is now 7. She has always been full of life and energy. Over the past 5/6 weeks she has not been herself. It started with her not running around like a crazy kid. I put it off as her…Continue
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NOW stands for National Outreach for von Willebrand and this was a first rate conference. If you know of such an event in your area why not share it with all of us.
Posted by Nel on March 1, 2015
Posted by Nel on March 5, 2015
Added by Mary on March 22, 2015