Von Willebrand's Disease (VWD) - Online Support Group

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Groups

 

What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.

VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.

Forum

Help with child's test results from a worried mom

Started by Apple in General. Last reply by Johntheelder Mar 31. 4 Replies

HiI am a worried mom.  My child was sent for Von Willebrand testing after seeing a Pediatrician.  He doesn't seem to have any symptoms of it except maybe some nose bleeds which we are able to stop within 15 to 20 minutes and except for a couple…Continue

National Hemophilia Conv. Orlando, Your questions?

Started by Johntheelder in General Mar 22. 0 Replies

Hi All!I am going to the National Hemophilia Convention in Orlando, this July 21,22,23. I plan to attend most of the VWD and VWD+elderly (that's me) discussions. Please post/answer this discussion with any concerns of yours. On request, I will…Continue

Looking for community help

Started by VWDgirl in General. Last reply by ModSupport Feb 2. 1 Reply

I'm wondering if there is anyone on here who may be able to help. A friend of mine just welcomed a Syrian refugee family who's infant son has hemophilia. Their son was born in terrible conditions in a refugee camp and his care up until leaving to…Continue

Tiredness

Started by Bern in General. Last reply by VWDgirl Jan 12. 3 Replies

My recent diagnosis of Von Willebrand disease came as a surprise to me and my family. However, it certainly does answer questions we have been posing to the doctors for at least 5 years now. The constant hour long nosebleeds, the 7-12 day…Continue

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