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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
I'm new to this board and fairly new to our daughter's diagnosis with Type I Von Willebrands last fall 2013. My daughter responded very well to DDAVP during her 6-hr challenge, but we were told she likely wouldn't need it unless she had an injury…Continue
I work at a BIG retail chain. I have worked there 7 years. It Used to. E that if I had a problem with bleeding management oked it in the system and all was well. Now they go through a 3rd party and I am gonna loose my job because the paper work…Continue
Hello to all and thank you for welcoming me in to your community. I posted a question yesterday and was told to post it on the disscussion board. I had surgery in November that was not able to be completed due to severe bleeding. My surgeon sent me…Continue
My son, 2 years old, was just diagnosed with VWD. The Dr said he won't b able to play conatct sports when he gets older. What do they mean by contact sports? We are a very sport oriented family, & are very bothered by this. Do any of you have…Continue
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The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.
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Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.
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