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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
Amazon is running a new promotion for Amazon Smile, their program that gives money back to Non Profits. For instance, BensFriends.org (my nonprofit) received $52 from Amazon Smile our 1st month…Continue
Hi everyone my 1 year old son has just been diagnosed with type 3 von willebrands disease and I was wondering if many other people have this type of vwd and there experiences of having a child with the disorder thanks
My daughter is 8 and any time we have to give her stimate it is like world war III trying to get her to take it. She hates it being put up her nose. I have tried allowing her to give it to herself but the dose goes into the air instead of her nose.…Continue
Walk day is September 28, 2014.I am a team captain for the Central Ohio Hemophilia Walk for the 3rd year in a row now. Our team fundraising goal is $1,500 this year. All proceeds go to the Central Ohio Hemophilia Chapter & benefit patients and…Continue
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The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.
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Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.