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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
Just want some feedback from you all on whether there are any additional things you may like to see on the site, or something we could jig to make things work better for you all. If you could have a think and reply to this discussion, we'd really…Continue
My husband is a young 78. He recently had a stress test (a nuclear stress test) showing that he had some abnormality. I'm not sure whether it showed an abnormality in the arteries. But a doc has ordered an angiogram. We're not terribly concerned…Continue
This comes from the Centers for disease control and prevention.CDC conducts research to:Learn more about the number of people with bleeding disorders and risk factors for complications.Develop and implement interventions that will help prevent…Continue
Okay so I have been a member of this group for some time and have never posted anything due to how depressing this subject is to me. I am 25 years old. I grew up as only child with my single mother and my grandparents being my legal guardians. As a…Continue
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The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.
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Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.