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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

Additional questions from a "newbie"

Started by Gilligan Girl in General. Last reply by Gilligan Girl Jan 23. 7 Replies

Some of the questions I want to ask are: do you all get nosebleeds on a fairly regular basis?  Are they spontaneous or caused by blowing your nose?  Do you all use Stimate (nasal spray)? and if so, do you carry it with you all the time?  What about…Continue

2ND transfusion

Started by kda1989 in General. Last reply by Hopeful_Kitten Jan 23. 8 Replies

Okay so I have been a member of this group for some time and have never posted anything due to how depressing this subject is to me. I am 25 years old. I grew up as only child with my single mother and my grandparents being my legal guardians. As a…Continue

Looking for women willing to discuss embarrassing issues

Started by Hopeful_Kitten in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Hopeful_Kitten Jan 23. 6 Replies

I'm new to the forum scene here and hate to be so forward, but I've been dealing with some intense female issues that have demolished my quality of life for at least two weeks of every month for the last year and am looking for answers. I've placed…Continue

Has anyone had a reaction to the nasal spray desmopressin?

Started by katgus in General. Last reply by Hopeful_Kitten Jan 21. 4 Replies

I had my first dose of nasal spray this week and had a reaction that required medial attention. I have had this med in infusion form prevously w no side affect other than low blood pressure. Am curious as to why this would happen. This was not my…Continue

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Latest Activity


Moderator
dancermom updated their profile
Thursday
Gilligan Girl replied to Gilligan Girl's discussion Additional questions from a "newbie"
"again, continued thanks to you all-"
Jan 23
Hopeful_Kitten replied to kda1989's discussion 2ND transfusion
"Michele - this is very interesting! I on the other hand LOVE red meat and eat it at least 4 times a…"
Jan 23
Hopeful_Kitten replied to kda1989's discussion 2ND transfusion
"Johntheelder - you have such a touching story and I agree with your small moments and fun lessons…"
Jan 23
Hopeful_Kitten replied to Hopeful_Kitten's discussion Looking for women willing to discuss embarrassing issues
"Michele - that's a great thought! I've found 2 VWD Specialist at the Mayo Clinic and…"
Jan 23
Hopeful_Kitten replied to Hopeful_Kitten's discussion Looking for women willing to discuss embarrassing issues
"Thank you so much BleederGirl - I'll be reaching out to you! "
Jan 23
Hopeful_Kitten replied to Hopeful_Kitten's discussion Looking for women willing to discuss embarrassing issues
"Thanks for the information dancermom, I appreciate all your help! "
Jan 23
Michele Brazelton replied to kda1989's discussion 2ND transfusion
"A few years ago after a big argument with my doctors I changed my diet like they wanted me to and I…"
Jan 22
 
 
 

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"To Know the Joy of Giving"

Blog Posts

coumadin

Posted by Rebecca on December 22, 2014 at 12:30pm 3 Comments

  I need to know if anyone has heard about  warafin Coumadin treatment  .. and if it is potentially dangerous for VWD patients.. ??  It makes sense logically in my mind that would it would be dangerous but when it was mentioned to the…

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