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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.


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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.


Son has really black eyes is tired and has pain. Some advice please.

Started by Ashmac in General. Last reply by Ashmac on Friday. 10 Replies

Hi there. My son who has type 2 vwd just recently diagnosed has been complaining of a sore ankle for months now on and off and now is complaining of shoulder pain too. He says sometimes it's unbearable and then other days nothing. And he has also…Continue

Where are my fellow Type 3 Severe folks at???

Started by BondGirl007 in General. Last reply by Johntheelder on Wednesday. 6 Replies

Hey all! :)Just checking in to see how many Type 3 vWd's are on this site???  I love meeting other severe peeps and sharing our horror stories! :)  Comment on this discussion if you are Type 3 <3Thanks,StacyContinue

Tags: III, vwd, 3, type

Pain Research News

Started by dkel9307 in General Oct 9. 0 Replies

Hi EveryoneOne of our great Moderators (Mads) on the Living With Erythromelalgia site came up with a great idea that we thought was worth sharing across the board.I know some of you are not chronically ill, or in chronic pain, but chances are you…Continue

Avoiding Scammers and Spammers

Started by dkel9307 in General Oct 8. 0 Replies

Hi EveryoneAt times, we have problems with scammers and spammers, and the problem is growing as our communities grow.Hence, I thought I would share a notice that Red Lawhern, Lead Moderator for our Trigeminal Neuralgia Network just posted to his…Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):


This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity

dkel9307 left a comment for Ksharman777
"Hi, Ksharman777!  Welcome…"
4 hours ago
Scott Orn left a comment for Ksharman777
"Hi Ksharman -  Huge welcome to the community! This is a great place! One tip, if you have…"
14 hours ago
Ksharman777 is now a member of Von Willebrand's Disease (VWD) - Online Support Group
14 hours ago
SK and Debbie Margolin are now friends
19 hours ago

dkel9307 left a comment for twiinkleyes
"Happy Birthday, twiinkleyes!  May the year ahead be your best-ever.  Kind…"
Ashmac replied to Ashmac's discussion Son has really black eyes is tired and has pain. Some advice please.
"When you say factor. What does that kean and entail? X"
Ashmac replied to Ashmac's discussion Son has really black eyes is tired and has pain. Some advice please.
"Thank you so much for your replies. He had his blood sugar levels tested as 8 took him to the…"
Bleeder Girl replied to Ashmac's discussion Son has really black eyes is tired and has pain. Some advice please.
"If your son has type 2 VWD, DDAVP or Stimate is not indicated for his type of VWD.  Type 2…"

Top Content 

1 Son has really black eyes is tired and has pain. Some advice please.

Son has really black eyes is tired and has pain. Some advice please.

Posted by Ashmac on September 29, 2014

2 Von Williebrand Disease and Childbirthing: Is it Safe?

Von Williebrand Disease and Childbirthing: Is it Safe?

Posted by missgiggles on September 28, 2014

3 New Stimate

New Stimate

Posted by Brianna on September 21, 2014


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Blog Posts

My daughter just started on Stimate...

Posted by onemom on October 4, 2014 at 12:49pm 4 Comments

My 14 year old daughter started on Stimate on September 10, 2014...it has not been a silver bullet so far.  We are really glad to have it just to try it and see if it helps.  We finally got it through an insurance override for this medication it…



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