"Giant welcome Ashley! this is a great place!"
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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.
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What is Von Willebrand's Disease?
Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
Forum
What do you like to do to occupy your time with?
Started by Ben Munoz in General on Monday. 0 Replies 0 Likes
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue
Wisdom tooth extraction
Started by ohshell in General. Last reply by Rachel83 May 13. 1 Reply 1 Like
hi everyone, ive been to the dentist quite a bit recently due to pain with my wisdom teeth.i need to have them extracted and was wondering if i had to have any special medication to have this done as i will have to have it done on the nhs.i have…Continue
Everyone please read, as we are having a problem with spammers
Started by Ben Munoz in General May 4. 0 Replies 0 Likes
All moderators and founders of Ben's Friends work very hard to keep spammers off the site, however their methods of applying for membership get more sophisticated each day. Just on this site, we must decline 25-50, maybe more, a day. There are…Continue
I am a clinical therapist working on improving how people can live a better quality of life with vWD.
Started by Doctor G in Recommend a Doctor, Therapist, or Clinic (Positive Review Only) Apr 29. 0 Replies 0 Likes
My code name is Doctor G. But I prefer Shannon. I am offering support and help to those having a difficult time coping with the stress of vWD. I am not trying to sell any service, just offer friendship to those who need it. I can honestly say I am a…Continue
Latest Activity
Kayla Haley left a comment for Scott Orn"Thank you for making me feel welcome. I really appreciate it."
Scott Orn left a comment for Kayla Haley"big welcome Kayla. this is a great place. Given your younger age, can you please tell your parents…"
ModeratorBen Munoz posted a discussion
What do you like to do to occupy your time with?
For those of you who aren't able to work any more. What do you like to do to fill your time? If you…See More
About LivingWithVWD.org - Von Willebrands Disease
Welcome to Living with VWD.
The goal of this website is to help and provide support to people living with Von Willebrand's Disease, along with the families and friends of VWD patients.
Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical
1) Share your VWD story and experiences on the My Page tab
2) Use the forum section to ask questions
3) Keep others updated via the blog section
Disclaimer
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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Top Content
| 1 |
Wisdom tooth extractionPosted by ohshell on May 8, 2013 |
| 2 |
I am a clinical therapist working on improving how people can live a better quality of life with vWD.Posted by Doctor G on April 29, 2013 |
| 3 |
What do you like to do to occupy your time with?Posted by Ben Munoz on May 20, 2013 |
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Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities, Ehlers-Danlos Syndrome, Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
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Blog Posts
Preparing For An Appointment With A New Doctor
Posted by Ben Munoz on May 7, 2013 at 3:33am 0 Comments 0 Likes
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…
Continue
April 2013 Community Newsletter
Posted by Ben Munoz on April 24, 2013 at 5:30pm 0 Comments 0 Likes
Dear LivingwithVWD Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to Scott’s …
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