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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

electric bill help for someone with vwd

Started by Brandon Roberts in General. Last reply by dkel9307 8 hours ago. 2 Replies

hi all my name is Brandon Roberts. I have vwd type 2a. I have been diagnosed with Lyme disease about a month ago and have been sick. Does anyone know of a company that can help with my $277 electric bill?

Could this be from VWD?

Started by Heather in General. Last reply by dancermom 8 hours ago. 1 Reply

My 17 year old daughter was recently diagnosed with VWD. We aren't sure yet which type she had. She goes back to the hematologist in August for more testing. Her dr did tell me that her von Willebrand factor was very low. His exact words were, "It's…Continue

New diagnoses...feeling overwhelmed

Started by Heather in General. Last reply by dkel9307 on Thursday. 9 Replies

My 17 year old daughter was diagnosed with von willebrands disease last week. We are both happy to finally have a diagnoses, but feeling a bit overwhelmed. We don't know which type she has yet. We go back in August for more testing. We actually got…Continue

Medical Terminology Q and A

Started by Johntheelder in General. Last reply by dkel9307 on Thursday. 6 Replies

Here is a short list of medical terminology that often shows up in Hematology articles. Where the medical authors get there vocabulary is a mystery. It really doesn't need to be so confusing.  Most of the terms consist of two or three parts. A…Continue

Tags: Terms, Medical

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Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

Disclaimer:

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity


Moderator
dkel9307 replied to Brandon Roberts's discussion electric bill help for someone with vwd
"Thanks Madere Good luck with everything, Brandon. Please do join the Lyme community. I have Lyme…"
8 hours ago

Moderator
dancermom replied to Heather's discussion Could this be from VWD?
"I think the lack of responses means that none of our members have had a Baker's cyst, Heather,…"
8 hours ago

Moderator
dkel9307 left a comment for Heather taylor
"Thanks Heather I feel for you and your daughter. may I suggest you post this on our Discussion…"
yesterday
Scott Orn left a comment for Heather taylor
"Hi Heather -  Huge welcome to the community! This is a great place! One tip, if you have…"
yesterday

Moderator
dancermom replied to Brandon Roberts's discussion electric bill help for someone with vwd
"Hi, Brandon, this looks like a good place to start looking for…"
yesterday
SK left a comment for Heather taylor
"Welcome Heather! It's good to have you with us!"
yesterday
Heather taylor left a comment for dkel9307
"Hi! My first born daughter was diagnosed around 2007 after some serious bleeding issues after cleft…"
yesterday

Moderator
dkel9307 left a comment for Heather taylor
"Hi, Heather!  Welcome to our VWD community!  I am happy to help you get…"
yesterday

Top Content 

1 Looking for help

Looking for help

Posted by Tbarbea2007 on June 29, 2014

2 New diagnoses...feeling overwhelmed

New diagnoses...feeling overwhelmed

Posted by Heather on July 22, 2014

3 What Are 10 Things We Don't Know About You?

What Are 10 Things We Don't Know About You?

Posted by dkel9307 on June 30, 2014

 
 
 

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June 2014 Community Newsletter

Posted by Ben Munoz on June 30, 2014 at 12:25am 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…
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