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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
I have always had chronic anaemia ever since I was a kid. I was having regular iron injections done weekly for years to to get my iron count up but it never got up far enough. The iron tablets never worked and my body just wouldn't absorb the iron…Continue
Hello there my name is ashley and I'm new to the group. My son has been diagnosed with vwd. At his first appointment on Wednesday it was a fair bit to take in. They said he is borderline between type 1 and 2 so just waiting on the results of the…Continue
Hi, everyone. Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting. The survey is about Telemedicine Sessions for Patient Education. If you are interested the link is here …Continue
Amazon is running a new promotion for Amazon Smile, their program that gives money back to Non Profits. For instance, BensFriends.org (my nonprofit) received $52 from Amazon Smile our 1st month…Continue
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The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.
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Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.