Von Willebrand's Disease (VWD) - Online Support Group

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.

VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.

Forum

Medications to be avoided by people with VWD

Started by Nel in General. Last reply by Mini May 23. 2 Replies

The Canadian Haemophilia association is a good source of information on von Willebrands Disorder…Continue

Interesting article. Help comes from unexpected quarters - Possible new antivenom from one of the oldest surviving mammal families

Started by Nel in General. Last reply by Amsey1 May 10. 3 Replies

Pit viper venom is haemotoxic but opossums have a blood protein, the von Willebrand Factor (vWF), which improves the animal’s ability to neutralise the anti-coagulant effect of the venom. In the 1990s researchers isolated the peptide from the…Continue

Looking for women willing to discuss embarrassing issues

Started by Hopeful_Kitten in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Aviator8 Apr 20. 8 Replies

I'm new to the forum scene here and hate to be so forward, but I've been dealing with some intense female issues that have demolished my quality of life for at least two weeks of every month for the last year and am looking for answers. I've placed…Continue

An interesting topic which members have been discussing on our FB page

Started by Nel in General Mar 5. 0 Replies

What are the chances of passing von Willebrand's disease on to my daughter?Reply by Suzanne DixonpediatricianThe condition you have, von Willebrand's disease, is an inherited disorder that alters the blood's ability to clot. It's usually inherited…Continue

Where are my fellow Type 3 Severe folks at???

Started by BondGirl007 in General. Last reply by Johntheelder Feb 24. 11 Replies

Hey all! :)Just checking in to see how many Type 3 vWd's are on this site???  I love meeting other severe peeps and sharing our horror stories! :)  Comment on this discussion if you are Type 3 <3Thanks,StacyContinue

Tags: III, vwd, 3, type

Frustrated Parent

Started by lisa in General. Last reply by suzee Feb 24. 11 Replies

My daughter was dignosted with VWD when she was 5 years old she is now 7.  She has always been full of life and energy.  Over the past 5/6 weeks she has not been herself.  It started with her not running around like a crazy kid. I put it off as her…Continue

Tonsils bleeding...ugh

Started by BondGirl007 in General. Last reply by BondGirl007 Feb 23. 9 Replies

Hi all :) I haven't been on the site in awhile and just wanted to say HELLO to everyone and hope you all are well and in "ok" health at least! I have Type 3 Severe von Willebrand Disease and haven't had any major issues lately (knock on wood!)  I…Continue

Tags: dentist, bleeds, gum, tonsils

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Latest Activity


Moderator
Madere (dancermom) left a comment for stingerbabe
"Welcome, stingerbabe, we're glad you are here. Feel free to post a discussion."
Thursday
stingerbabe is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Thursday
Mini liked Mary's blog post Learning
May 23
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May 23
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May 23
Mini replied to Nel's discussion Medications to be avoided by people with VWD
"This is a good one xx. U should hv a look at this by Haemophilia Foundation…"
May 23
Mini liked Nel's discussion Medications to be avoided by people with VWD
May 23

Moderator
Madere (dancermom) left a comment for Mini
"Welcome, Mini, to this supportive community. Feel free to post a discussion to introduce yourself…"
May 22
Mini is now a member of Von Willebrand's Disease (VWD) - Online Support Group
May 22

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Madere (dancermom) left a comment for YosemiteSam
"Welcome, Sam, to this supportive community. Feel free to open a discussion to introduce yourself or…"
May 12
YosemiteSam is now a member of Von Willebrand's Disease (VWD) - Online Support Group
May 12
Amsey1 replied to Nel's discussion Interesting article. Help comes from unexpected quarters - Possible new antivenom from one of the oldest surviving mammal families
"knowledge is unlimited - there is no limit.see also…"
May 10
 
 
 

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Learning

Posted by Mary on March 22, 2015 at 8:28pm 0 Comments

I was diagnosed in my sophmore year of high school. Becuase i was trying to focus on school i never really thought about the seriousness of this disease so im trying to learn more about it. Im thinking about getting a bracelet for it just incase… Continue

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