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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.
VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.
Hi all!I was recently diagnosed with "double heterozygosity for type 1 and type 2N vwb" after undergoing some genetic tests. I've been trying to find some information about having two types but its proving difficult. I would be grateful if anyone…Continue
My 3 1/2 year old boy has VWD Type 2B and has had frequent nose bleeds since he was 2yrs old (approximately every 4-10 days). During this time he’s been to the ER twice for the nose bleeds. We’ve done everything recommended; including humidifiers,…Continue
Hello,I just joined this site in hope to get support and give support to other parents/patients with VWD. My daughter was diagnosed at age 12 with type 1. For the last 3 1/2 years we have gone to many hematology and GYN aptt's trying find a method…Continue
Hey all! :)Just checking in to see how many Type 3 vWd's are on this site??? I love meeting other severe peeps and sharing our horror stories! :) Comment on this discussion if you are Type 3 <3Thanks,StacyContinue
Jennifer from the CDM Group would like to interview two or three VWD patients with type 3:We would like to have a 45 minute telephone conversation with you if you fit the following criteria. Those that qualify will be compensated for their time…Continue
Bri asked this question:"Thanks for the warm welcome. We are so happy to have found this group. Our GP said our daughter's iron levels can be maintained by diet, is this true?"What do you think?Continue
Hi, everyone, I am hearing from the good folks at Research now that a good number of you are midway through the survey. Thank you for participating. If you are stuck on something, please let us know, so we can help clarify. If those of you who are…Continue
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