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Forum

How You Can Help Spread the Word About LivingWithVWD.org

Started by Ben Munoz in General May 18. 0 Replies

Members and friends,We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communities.  Without a doubt, we will one day be as large and active as our largest communities, …Continue

Twitter Chat

Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18. 2 Replies

Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue

Tags: Chat, Twitter

What would you do to comfort a sick friend?

Started by Armando Abrero in General May 9. 0 Replies

"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.I will be compiling…Continue

What Is von Willebrand Disease?

Started by John "JC" Colyer in General. Last reply by ninjamom Apr 29. 1 Reply

Von Willebrand disease (VWD) is a bleeding disorder. It affects your blood's ability to clot. If your blood doesn't clot, you can have heavy, hard-to-stop bleeding after an injury. The bleeding can damage your internal organs. Rarely, the bleeding…Continue

Tags: Disease?, Willebrand, von, Is, What

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Armando Abrero posted a blog post

Facebook Feature Supports Organ Donation

We never realize the value of organ donation, until we're on the receiving end.…See More
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Ben Munoz's blog post was featured

May 2012 LivingWithVWD Community Newsletter

Dear Friends and Family of LivingWithVWD,We are so excited we cannot wait to tell you about how our…See More
Sunday
Ben Munoz posted a blog post

May 2012 LivingWithVWD Community Newsletter

Dear Friends and Family of LivingWithVWD,We are so excited we cannot wait to tell you about how our…See More
Saturday
John "JC" Colyer commented on John "JC" Colyer's group Affirmations and Quotes
"Don’t base your relationship decisions off of the advice of people who don’t have to…"
Friday

About LivingWithVWD.org - Von Willebrands Disease

Welcome to Living with VWD.

The goal of this website is to help and provide support to people living with Von Willebrand's Disease, along with the families and friends of VWD patients.

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

1) Share your VWD story and experiences on the My Page tab
2) Use the forum section to ask questions
3) Keep others updated via the blog section

Disclaimer
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

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    Von Willebrand's Disease (Von Willebrand's Disease (VWD) - Online Support Groupc) - Online Support Group

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    Von Willebrand’s Disease (VWD) - Online Support Group

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    Facebook Feature Supports Organ Donation

    Posted by Armando Abrero on May 28, 2012 at 8:33pm 0 Comments

    We never realize the value of organ donation, until we're on the receiving end.…



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    May 2012 LivingWithVWD Community Newsletter

    Posted by Ben Munoz on May 26, 2012 at 9:00am 0 Comments

    Dear Friends and Family of LivingWithVWD,

    We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities…

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