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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

Financial Assistance Program for VWD Patients in Need from CSL Behring

Started by dancermom in General. Last reply by SK 4 hours ago. 3 Replies

I came across a financial assistance resource today for VWD patients who need assistance paying for treatments at http://www.mysourcecsl.com/financial-support/There is a hotline you can…Continue

Hi! I'm new :)

Started by Pandamandabere in General. Last reply by SK 4 hours ago. 4 Replies

Hello everyone!So a couple of people suggested I start a discussion to introduce myself.My name is Amanda and I just moved to Atlanta three weeks ago! I'm currently in the Genetic Counseling Training Program at Emory and I'm loving it. Coming from a…Continue

Dark Circles

Started by KaylaJo in General. Last reply by SK 4 hours ago. 1 Reply

I have been noticing dark red circles under my eyes.. and not sure if this is attributed to my VWB Type I.  It almost looks like brusing.  I've never had this but I have noticed it the last six months.. I eat pretty healthy.  So I'm not sure.  Has…Continue

Tags: brusing, circles, dark, eyes

New diagnoses...feeling overwhelmed

Started by Heather in General. Last reply by KaylaJo 7 hours ago. 12 Replies

My 17 year old daughter was diagnosed with von willebrands disease last week. We are both happy to finally have a diagnoses, but feeling a bit overwhelmed. We don't know which type she has yet. We go back in August for more testing. We actually got…Continue

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Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

Disclaimer:

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity

SK replied to dancermom's discussion Financial Assistance Program for VWD Patients in Need from CSL Behring
"This info will help many people, dancermom! "
4 hours ago
SK liked dancermom's discussion Financial Assistance Program for VWD Patients in Need from CSL Behring
4 hours ago
SK replied to Pandamandabere's discussion Hi! I'm new :)
"Hello Pandamandabere! I really enjoyed your discussion, your energy, and wisdom! You are most…"
4 hours ago
Scott Orn left a comment for Lucia
"Hi Lucia -  Huge welcome to the community! This is a great place! One tip, if you have…"
4 hours ago
SK replied to KaylaJo's discussion Dark Circles
"Hi KaylaJo,  It's good to hear from you! I'm not the resident expert here, but I…"
4 hours ago

Moderator
Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - July 2014 Issue

Just the Stats:Communities:36Friends:41,000+Welcome New Members and Greetings from Ben's…See More
4 hours ago
KaylaJo's discussion was featured

Dark Circles

I have been noticing dark red circles under my eyes.. and not sure if this is attributed to my VWB…See More
7 hours ago

Moderator
dkel9307 liked KaylaJo's discussion Dark Circles
7 hours ago

Top Content 

1 New diagnoses...feeling overwhelmed

New diagnoses...feeling overwhelmed

Posted by Heather on July 22, 2014

2 Hi! I'm new :)

Hi! I'm new :)

Posted by Pandamandabere on July 29, 2014

3 Please Welcome Our New Moderator - Johntheelder

Please Welcome Our New Moderator - Johntheelder

Posted by dkel9307 on July 18, 2014

 
 
 

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Blog Posts

Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:46am 0 Comments

Just the Stats:

Communities:36

Friends:41,000+



Welcome New Members and Greetings from Ben's Friends!

 

"You're a firework," as the song goes. We…
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