Von Willebrand's Disease (VWD) - Online Support Group

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Groups

 

What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.

VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.

Forum

To Surgery or Not To Surgery (Long winded Question - Sorry)

Started by Meredith in General on Wednesday. 0 Replies

My 3 1/2  year old boy has VWD Type 2B and has had frequent nose bleeds since he was 2yrs old (approximately every 4-10 days).  During this time he’s been to the ER twice for the nose bleeds. We’ve done everything recommended; including humidifiers,…Continue

Where are my fellow Type 3 Severe folks at???

Started by BondGirl007 in General. Last reply by dean Jul 31. 12 Replies

Hey all! :)Just checking in to see how many Type 3 vWd's are on this site???  I love meeting other severe peeps and sharing our horror stories! :)  Comment on this discussion if you are Type 3 <3Thanks,StacyContinue

Tags: III, vwd, 3, type

Researcher seeking a few Type 3 patients or parents for an interview

Started by Madere (dancermom) in General Jul 20. 0 Replies

Jennifer from the CDM Group would like to interview two or three VWD patients with type 3:We would like to have a 45 minute telephone conversation with you if you fit the following criteria. Those that qualify will be compensated for their time…Continue

A question from new member Bri

Started by Madere (dancermom) in General. Last reply by Johntheelder Jul 12. 2 Replies

Bri asked this question:"Thanks for the warm welcome. We are so happy to have found this group. Our GP said our daughter's iron levels can be maintained by diet, is this true?"What do you think?Continue

Looking for women willing to discuss embarrassing issues

Started by Hopeful_Kitten in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by suzee Jul 11. 9 Replies

I'm new to the forum scene here and hate to be so forward, but I've been dealing with some intense female issues that have demolished my quality of life for at least two weeks of every month for the last year and am looking for answers. I've placed…Continue

Anyone stuck on completing the Research Now survey?

Started by Madere (dancermom) in General. Last reply by Madere (dancermom) Jun 29. 3 Replies

Hi, everyone, I am hearing from the good folks at Research now that a good number of you are midway through the survey. Thank you for participating. If you are stuck on something, please let us know, so we can help clarify. If those of you who are…Continue

Von Willebrand's Disease Insight Opportunity – Receive $50 for completing a Research Survey

Started by Madere (dancermom) in General. Last reply by Madere (dancermom) Jun 25. 3 Replies

Members, please read below. From time to time, Ben's Friends learns of opportunities that may aid in research efforts and may help develop new treatments for members on our communities. We may occasionally present these opportunities on the forum,…Continue

Medications to be avoided by people with VWD

Started by Nel in General. Last reply by Mini May 23. 2 Replies

The Canadian Haemophilia association is a good source of information on von Willebrands Disorder…Continue

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Latest Activity


Moderator
Johntheelder left a comment for ModSupport
"Thanks for the head's up. John the elder"
Thursday
Meredith posted a discussion

To Surgery or Not To Surgery (Long winded Question - Sorry)

My 3 1/2  year old boy has VWD Type 2B and has had frequent nose bleeds since he was 2yrs old…See More
Wednesday

Moderator
Elodie left a comment for Meredith
"Welcome Meredith! Please feel free to participate in discussions or start your own. The…"
Wednesday
Profile IconMeredith and May joined Von Willebrand's Disease (VWD) - Online Support Group
Wednesday

Moderator
Johntheelder left a comment for May
"Hello May! Try posting a question about 2a and 2b experiences of other people on the site. I hope…"
Tuesday
ModSupport is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Monday

Moderator
Johntheelder left a comment for Kellyanne
"Hi Kellyanne! Many families are on this site. You could start a discussion of issues that are…"
Aug 19

Moderator
Elodie left a comment for Kellyanne
"Welcome Kellyanne! Please feel free to participate in discussions or start your own. It's the…"
Aug 19
Kellyanne is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Aug 19

Moderator
Johntheelder left a comment for chvall
"good day, Chvall! Welcome to the world of medical education. You have now become a teacher of…"
Aug 13

Moderator
Elodie left a comment for chvall
"Welcome! Please feel free to participate in discussions or start your own. The…"
Aug 13
chvall is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Aug 13
 
 
 

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