Welcome! You're not alone.
If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
Read More from our First-Time-User Guide
Share, support and inspire. Don't miss the fun!
Join our Twitter-chat session slated on this schedule:
Sunday, August 4, 2013 - 2PM EST / 11AM PST / 7PM UK Time
There are no birthdays today
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.
BensFriends.org helps 80,000+ rare disease patients every month but until the IRS grants us 501c3 status, we can’t raise money from foundations and corporations. It costs about $2,000 a month to run the 30+ communities. In order to sustain our monthly operating costs, we called for members' donation campaign. Would you help us keep the miracle going at Ben's Friends? If you can, please visit our Donate page on this link.
Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of vWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary vWD: vWD Type I, vWD Type II and vWD III. Within the three inherited types of vWD there are various subtypes. Platelet type vWD is also an inherited condition.
vWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases. There are various factors that affect the presentation and severity of symptoms of vWD such as blood type. (Wikipedia)
Hi Everyone - hope you are enjoying site. We set it up so folks could connect and share info and support. The network is really what you make it and it's growing really nicely. I can see lot's of love and support happening here on a daily basis.Most…Continue
In America, this Thursday is Thanksgiving. We spend the day thinking about what we are grateful for and also eating a lot of turkey and pie. :)I thought it would be fun to start a discussion on what we're all thankful for. I'll get it going:I'm…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Welcome to Living with VWD.
The goal of this website is to help and provide support to people living with Von Willebrand's Disease, along with the families and friends of VWD patients.
Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
1) Share your VWD story and experiences on the My Page tab
2) Use the forum section to ask questions
3) Keep others updated via the blog section
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
You are disconnected from chat. Connect to join the chat.
Sign up to chat on Von Willebrand's Disease (VWD) - Online Support Group.
Posted by Kika on November 3, 2013
Posted by fujika on November 15, 2013
Posted by Scott Orn on November 28, 2013
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to firstname.lastname@example.org.