Von Willebrand's Disease (VWD) - Online Support Group


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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.

VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.


Von Willebrand Types

Started by OldJake in General. Last reply by Bubble5042 yesterday. 4 Replies

Hi allPosting for the first time here from the sunny but chilly UK.I went to the hospital with my daughter (13) yesterday as we suspected she may have VWD.This was confirmed by the haemotologist who said that she has Type 1.  My mum is convinced…Continue

Help! Mainly an insurance question. But some other info.

Started by JKR in General. Last reply by Johntheelder on Thursday. 6 Replies

 A lot of time has gone by since I last posted.  I think I posted mainly about my concern re: the angiogram-- but things got so busy etc. that I couldn't post re: the heart surgery.My husband has had open heart surgery last February. (Feb 5,2015 to…Continue

National Hemophilia Conference, Orlando, July 21-23

Started by Johntheelder in General on Wednesday. 0 Replies

I am going to attend this meeting and hope to update my understanding of VWD, inhibitors and new treatments. Anybody else thinking of going???? There are a number of forums dedicated to VWD issues. Google NHF annual meeting for more info.John the…Continue

Tags: Hemophilia

Very much in need of wisdom from VWD-ers!

Started by btdyq5 in General. Last reply by VWDgirl May 21. 8 Replies

Hi everyone, I'm a new member and this is my first post on this forum. I was hoping I might be able to ask a few questions of this community, in an attempt to gain some insight into the relatively confusing diagnostic limbo in which I currently find…Continue

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Latest Activity

Bubble5042 replied to OldJake's discussion Von Willebrand Types
"Hello, I have VWD Type III severe and my daughter has type 2M. Basically the geneticist said that…"

Johntheelder replied to JKR's discussion Help! Mainly an insurance question. But some other info.
"Nurses not knowing the procedures...... expect this anytime you have to have P Humate (Alphanate)…"
JKR replied to JKR's discussion Help! Mainly an insurance question. But some other info.
"Anyway to answer your question Suzee your question about necessary surgery is a good one -- one…"
JKR posted a status
"Wanted to thank both of you for your input, but I couldn't get on the site for unknown reasons. v\"

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