Von Willebrand's Disease (VWD) - Online Support Group
Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
Getting Started in Discourse
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Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Bens Friends Communities
Who is bens Friends
Newbies guide to VWD
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
New Member Check In
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
General discussion for topics related to Living With VWD
Pregnancy concerns with type 1 VWD
Need 504 accomodation examples!
Recommend a Doctor, Therapist, or Clinic (Positive
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
I am a clinical therapist working on improving how people can live a better quality of life with vWD
Having a rough day? We're here to listen.
Suicide Hotline Numbers
Welcome to the Complementary Therapies forum! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with PsA. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. Treatment with medications is the only evidence-based treatment for Psoriatic Arthritis, but for some, treatment of the disease means more than medication alone - this is the place to discuss healing modalities that can complement medical treatment.
Prayer and healing Energy Requests
A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.
This is our new group messaging area. Just enter a reply. If you want to send private chat simply click on the mebers avatar and start messaging. You can invite others to join you. You can also message by clicking on your avatar and the envelope in the top line
News from Bens Friends -
Bleeding for 5weeks
Embarrassingly basic question
Events of Interest to VWD Patients. Just contact a mod to have your event listed. (all postings must be approved)
Discussion about this site, its organization, how it works, and how we can improve it.
Where John the elder and Lis live
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