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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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"We're In This Together: Stories & Tips from Patients with Rare Diseases" can be found HERE.
Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of vWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary vWD: vWD Type I, vWD Type II and vWD III. Within the three inherited types of vWD there are various subtypes. Platelet type vWD is also an inherited condition.
vWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases. There are various factors that affect the presentation and severity of symptoms of vWD such as blood type. (Wikipedia)
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FDA Rescinds Exclusivity for Octapharma’s Wilate® In 2012, the US Food and Drug Administration (FDA) rescinded the seven-year orphan drug exclusivity for Octapharma’s Wilate®, an injectable human plasma-derived von Willebrand factor (VWF)/factor…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Welcome to Living with VWD.
The goal of this website is to help and provide support to people living with Von Willebrand's Disease, along with the families and friends of VWD patients.
Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
1) Share your VWD story and experiences on the My Page tab
2) Use the forum section to ask questions
3) Keep others updated via the blog section
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
Posted by onemom on January 19, 2014
Posted by Kika on November 3, 2013
Added by Christina on October 19, 2010
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