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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

Any suggestions to improve the site?

Started by Nel in General yesterday. 0 Replies

Just want some feedback from you all on whether there are any additional things you may like to see on the site, or something we could jig to make things work better for you all. If you could have a think and reply to this discussion, we'd really…Continue

My husband has VWD 2 acquired. I need info on getting an angiogram & more

Started by JKR in General. Last reply by JKR on Thursday. 7 Replies

My husband is a young 78.  He recently had a stress test (a nuclear stress test) showing that he had some abnormality.  I'm not sure whether it showed an abnormality in the arteries.  But a doc has ordered an angiogram.  We're not terribly concerned…Continue

Does it make you feel more optimistic to know that there is so much ongoing research into von Willebrand Disease?

Started by Nel in General. Last reply by Gilligan Girl on Tuesday. 2 Replies

This comes from the Centers for disease control and prevention.CDC conducts research to:Learn more about the number of people with bleeding disorders and risk factors for complications.Develop and implement interventions that will help prevent…Continue

2ND transfusion

Started by kda1989 in General. Last reply by Gilligan Girl on Tuesday. 3 Replies

Okay so I have been a member of this group for some time and have never posted anything due to how depressing this subject is to me. I am 25 years old. I grew up as only child with my single mother and my grandparents being my legal guardians. As a…Continue

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Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

Disclaimer:

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity


Moderator
Nel posted a discussion

Any suggestions to improve the site?

Just want some feedback from you all on whether there are any additional things you may like to see…See More
yesterday
JKR replied to JKR's discussion My husband has VWD 2 acquired. I need info on getting an angiogram & more
" "
Thursday
JKR replied to JKR's discussion My husband has VWD 2 acquired. I need info on getting an angiogram & more
"  I've already replied a couple times and don't see it posted.  I'll try…"
Thursday

Moderator
Johntheelder left a comment for Justlearning
"Hello Justlearning! for general information the NIH sites, Mayo Clinic and the Australian…"
Thursday
Scott Orn left a comment for Justlearning
"Big welcome JustLearning! One tip, if you have specific questions it's best to start a New…"
Thursday

Moderator
Nel left a comment for Justlearning
"Hello Justlearning. Welcome to this community. I hope you will feel at home here and as Alina said,…"
Wednesday

Moderator
Alina left a comment for Justlearning
"Welcome to the group Justlearning. I'm glad you found us! Feel free to start your own…"
Wednesday
Justlearning is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Wednesday

Top Content 

1 My husband has VWD 2 acquired.  I need info on getting an angiogram & more

My husband has VWD 2 acquired. I need info on getting an angiogram & more

Posted by JKR on December 15, 2014

2 Boob Job??? :)

Boob Job??? :)

Posted by Ren on November 29, 2014

3 2ND transfusion

2ND transfusion

Posted by kda1989 on December 15, 2014

 
 
 

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Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 10:16am 0 Comments

Just the Stats:

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Friends: 44,000+

GratitudeThank…
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