Von Willebrand's Disease (VWD) - Online Support Group

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Groups

 

What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.

VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.

Forum

Looking for community help

Started by VWDgirl in General. Last reply by ModSupport Feb 2. 1 Reply

I'm wondering if there is anyone on here who may be able to help. A friend of mine just welcomed a Syrian refugee family who's infant son has hemophilia. Their son was born in terrible conditions in a refugee camp and his care up until leaving to…Continue

Tiredness

Started by Bern in General. Last reply by VWDgirl Jan 12. 3 Replies

My recent diagnosis of Von Willebrand disease came as a surprise to me and my family. However, it certainly does answer questions we have been posing to the doctors for at least 5 years now. The constant hour long nosebleeds, the 7-12 day…Continue

An Invitation to Participate VWD Patients Online Survey

Started by Ben Munoz in General Jan 9. 0 Replies

Hi, Everyone! Lieberman Research Worldwide, a market research company, is conducting an online survey on inherited bleeding disorders and we are looking for your participation!  Qualified participants who complete our full survey will receive an…Continue

Blood Donations

Started by Goldbloomer in General. Last reply by Goldbloomer Jan 6. 4 Replies

Hello,I was curious if I should not give blood with VWD. In the past I gave blood prior to diagnosis. I don't plan on giving blood again after getting so sick, but I was wondering if I am able to with VWD. Good knowledge to have in the event of a…Continue

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Top Content 

1 Looking for community help

Looking for community help

Posted by VWDgirl on January 4, 2016

 
 
 

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