Welcome! You're not alone.
If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.
BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical.
Know more about our PARTNERS, visit this link.
Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
Hello everyone. I took my daughter to the gynecologist for heavy menstrual bleeding. Her Von Willebrands factor just came back 39 (should be over 50). Now looking back this is starting to all make sense. I have sooo many questions.Can motrin…Continue
I am looking to start a support group for my daughter. She is 14 years old and has very heavy and prolonged bleeding with her periods. Being a teen and dealing with heavy periods is very tough on her. Nothing seems to help her either. Tried…Continue
Hi again,Well, my hematologist did not think the nosebleeds were caused by Nioxin. I've stopped using it nevertheless. He also suggested I see an ENT for cauterization. I was hesitant to proceed, but did so after hearing from someone that it's no…Continue
Today was finally the day after months of waiting to see my Haematologist!I have been seeing a different GP lately due to Heart problems. I have been having really bad palpitations. So I have done the Halter Monitor and echo however she said it…Continue
Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.
Here is how you can optimize your FREE membership.
Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.