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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

My daughter/ Anyone in Michigan?

Started by Patty in General. Last reply by onemom 7 hours ago. 10 Replies

Hello everyone.  I took my daughter to the gynecologist for heavy menstrual bleeding.  Her Von Willebrands factor just came back 39 (should be over 50).  Now looking back this is starting to all make sense.  I have sooo many questions.Can motrin…Continue

Teen daughter with heavy and prolonged periods

Started by Kika in General. Last reply by onemom 8 hours ago. 15 Replies

I am looking to start a support group for my daughter.  She is 14 years old and has very heavy and prolonged bleeding with her periods.  Being a teen and dealing with heavy periods is very tough on her.  Nothing seems to help her either.  Tried…Continue

Nosebleeds/VW/Stymate questions

Started by Gilligan Girl in General 15 hours ago. 0 Replies

Hi again,Well, my hematologist did not think the nosebleeds were caused by Nioxin.  I've stopped using it nevertheless.  He also suggested I see an ENT for cauterization.  I was hesitant to proceed, but did so after hearing from someone that it's no…Continue

Update

Started by Perth Mum in General. Last reply by Perth Mum yesterday. 6 Replies

Today was finally the day after months of waiting to see my Haematologist!I have been seeing a different GP lately due to Heart problems. I have been having really bad palpitations. So I have done the Halter Monitor and echo however she said it…Continue

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Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

Disclaimer:

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity


Moderator
dkel9307 liked Gilligan Girl's discussion Nosebleeds/VW/Stymate questions
5 hours ago
Gilligan Girl's discussion was featured

Nosebleeds/VW/Stymate questions

Hi again,Well, my hematologist did not think the nosebleeds were caused by Nioxin.  I've stopped…See More
5 hours ago

Moderator
dkel9307 left a comment for MaeJJ230
"Happy Birthday, MaeJJ230!  May the year ahead be your best-ever.  Kind…"
5 hours ago

Moderator
dkel9307 left a comment for Benard
"Happy Birthday, Benard!  May the year ahead be your best-ever.  Kind…"
5 hours ago
onemom replied to Patty's discussion My daughter/ Anyone in Michigan?
"All NSAIDS make a HUGE difference in a person with VWD.  My daughter was prescribed them…"
7 hours ago
onemom replied to Kika's discussion Teen daughter with heavy and prolonged periods
"Our hospital has the same type of support group camp.  I signed my daughter up for it last…"
8 hours ago
Tbarbea2007 replied to Patty's discussion My daughter/ Anyone in Michigan?
"I live in Michigan! And yes Motrin can change your platelet numbers and make VWD worse! Tomorrow I…"
11 hours ago
Gilligan Girl posted a discussion

Nosebleeds/VW/Stymate questions

Hi again,Well, my hematologist did not think the nosebleeds were caused by Nioxin.  I've stopped…See More
15 hours ago

Top Content 

1 My daughter/ Anyone in Michigan?

My daughter/ Anyone in Michigan?

Posted by Patty on September 7, 2014

2 Son has really black eyes is tired and has pain. Some advice please.

Son has really black eyes is tired and has pain. Some advice please.

Posted by Ashmac on September 29, 2014

3 Update

Update

Posted by Perth Mum on October 28, 2014

 
 
 

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Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:42am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

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