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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not meant to substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and never disregard professional medical advice or delay in seeking it because of something you have read on this site. Ben’s Friends does not endorse any particular therapy, doctor or facility shared in this forum and always recommends consulting with your doctor before adopting any treatment mentioned on this site.

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.

VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.

There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.

Forum

Hey guys some advice needed.

Started by Ashmac in General. Last reply by Ashmac on Monday. 10 Replies

Hello there my name is ashley and I'm new to the group. My son has been diagnosed with vwd. At his first appointment on Wednesday it was a fair bit to take in. They said he is borderline between type 1 and 2 so just waiting on the results of the…Continue

My daughter/ Anyone in Michigan?

Started by Patty in General. Last reply by tesstee on Saturday. 5 Replies

Hello everyone.  I took my daughter to the gynecologist for heavy menstrual bleeding.  Her Von Willebrands factor just came back 39 (should be over 50).  Now looking back this is starting to all make sense.  I have sooo many questions.Can motrin…Continue

qualitative v quantitative

Started by labarista in General. Last reply by VWDgirl on Friday. 7 Replies

hello, 20 years ago I was diagnosed with Von Willebrands in Canada. Now to make a long story short despite many issues when I found myself moving around the globe, I never got treatment of any kind and since leaving Canada I didn't need any kind of…Continue

How do you find good doctors and hospitals?????

Started by Johntheelder in General. Last reply by dancermom on Friday. 1 Reply

I am a type III vWD, special category- acquired not hereditary, apparently my immune system attacks VWF with inhibitors and I lose all my VWF and factor VIII. Unfortunately my immune system has been very active the last three or so years so I have…Continue

Tags: information, hospitals, doctors, finding

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Welcome to Living with VWD!

The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.

Here is how you can optimize your FREE membership.

  • Share your VWD story and experiences on the My Page tab
  • Use the forum section to ask questions
  • Keep others updated via the blog section

Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical

Disclaimer:

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.

Latest Activity


Moderator
dkel9307 left a comment for Ava3
"Hi, Ava3!  Welcome to our VWD community!  I am happy to help you get the…"
14 hours ago
SK left a comment for Ava3
"Welcome Ava! This is a great place for info and support! Please feel at home join in the…"
17 hours ago
Ava3 is now a member of Von Willebrand's Disease (VWD) - Online Support Group
17 hours ago

Moderator
dkel9307 left a comment for megaangel
"Happy Birthday, megaangel! My wish for you is that the year ahead is your best-ever. Kind…"
yesterday
Ashmac replied to Ashmac's discussion Hey guys some advice needed.
"Thank you. He recieved his medical card today which says type 2 but doesnt say what type of 2? I…"
Monday

Moderator
Johntheelder left a comment for jhnurse5
"I am glad you found us, jhnurse! Lots of ears here to listen to your concerns. Just about every…"
Monday
Scott Orn left a comment for jhnurse5
"Hi jhnurse - Huge welcome to the community! This is a great place! One tip, if you have specific…"
Monday

Moderator
dkel9307 left a comment for jhnurse5
"Hi, jhnurse5!  Welcome to our VWD community!  I am happy to help you get…"
Monday

Top Content 

1 Type 3 vwd

Type 3 vwd

Posted by Gareth on August 22, 2014

2 Does anyone get sick when they bleed?

Does anyone get sick when they bleed?

Added by onemom on August 29, 2014

3 Teen daughter with heavy and prolonged periods

Teen daughter with heavy and prolonged periods

Posted by Kika on September 8, 2014

 
 
 

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Blog Posts

Does anyone get sick when they bleed?

Posted by onemom on August 29, 2014 at 1:05am 13 Comments

My daughter age 14 becomes ill with some kind of virus or another every time she bleeds.  After tons of allergy and immunology tests, a ct scan of her lungs, vaccines vitamins, everything looks normal.  Her pediatrician fell that it is probably…

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