Von Willebrand's Disease (VWD) - Online Support Group

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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.

VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.

Forum

Where are my fellow Type 3 Severe folks at???

Started by BondGirl007 in General. Last reply by dean on Friday. 12 Replies

Hey all! :)Just checking in to see how many Type 3 vWd's are on this site???  I love meeting other severe peeps and sharing our horror stories! :)  Comment on this discussion if you are Type 3 <3Thanks,StacyContinue

Tags: III, vwd, 3, type

Researcher seeking a few Type 3 patients or parents for an interview

Started by Madere (dancermom) in General Jul 20. 0 Replies

Jennifer from the CDM Group would like to interview two or three VWD patients with type 3:We would like to have a 45 minute telephone conversation with you if you fit the following criteria. Those that qualify will be compensated for their time…Continue

A question from new member Bri

Started by Madere (dancermom) in General. Last reply by Johntheelder Jul 12. 2 Replies

Bri asked this question:"Thanks for the warm welcome. We are so happy to have found this group. Our GP said our daughter's iron levels can be maintained by diet, is this true?"What do you think?Continue

Looking for women willing to discuss embarrassing issues

Started by Hopeful_Kitten in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by suzee Jul 11. 9 Replies

I'm new to the forum scene here and hate to be so forward, but I've been dealing with some intense female issues that have demolished my quality of life for at least two weeks of every month for the last year and am looking for answers. I've placed…Continue

Anyone stuck on completing the Research Now survey?

Started by Madere (dancermom) in General. Last reply by Madere (dancermom) Jun 29. 3 Replies

Hi, everyone, I am hearing from the good folks at Research now that a good number of you are midway through the survey. Thank you for participating. If you are stuck on something, please let us know, so we can help clarify. If those of you who are…Continue

Von Willebrand's Disease Insight Opportunity – Receive $50 for completing a Research Survey

Started by Madere (dancermom) in General. Last reply by Madere (dancermom) Jun 25. 3 Replies

Members, please read below. From time to time, Ben's Friends learns of opportunities that may aid in research efforts and may help develop new treatments for members on our communities. We may occasionally present these opportunities on the forum,…Continue

Medications to be avoided by people with VWD

Started by Nel in General. Last reply by Mini May 23. 2 Replies

The Canadian Haemophilia association is a good source of information on von Willebrands Disorder…Continue

Interesting article. Help comes from unexpected quarters - Possible new antivenom from one of the oldest surviving mammal families

Started by Nel in General. Last reply by Amsey1 May 10. 3 Replies

Pit viper venom is haemotoxic but opossums have a blood protein, the von Willebrand Factor (vWF), which improves the animal’s ability to neutralise the anti-coagulant effect of the venom. In the 1990s researchers isolated the peptide from the…Continue

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Welcome to Living with VWD!

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Latest Activity

dean replied to BondGirl007's discussion Where are my fellow Type 3 Severe folks at???
"My son has type , stress from his mom & I divorce resulted in severe bleeds , over the years…"
Friday

Moderator
Elodie left a comment for Austin
"Welcome Austin! Thanks for helping :-)"
Jul 29
Austin is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Jul 29

Moderator
Johntheelder left a comment for Kelly
"Welcome Kelly. Do you know if the FVIII deficiency is just the result of low VWF or do you have…"
Jul 26

Moderator
Elodie left a comment for Kelly
"Welcome Kelly! Please feel free to start a discussion to ask questions or introduce yourself by…"
Jul 26
Kelly is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Jul 26

Moderator
Madere (dancermom) left a comment for dean
"Welcome, dean, we're glad you are here. Feel free to jump right in and share your story."
Jul 25

Moderator
Elodie left a comment for dean
"Welcome Dean! The easiest way to use this website is to either participate in discussions or start…"
Jul 24
dean is now a member of Von Willebrand's Disease (VWD) - Online Support Group
Jul 24

Moderator
Madere (dancermom)'s discussion was featured

Researcher seeking 2 or 3 Type 3 patients or parents for an interview

Jennifer from the CDM Group would like to interview two or three VWD patients with type 3:We would…See More
Jul 20

Moderator
Madere (dancermom) posted a discussion

Researcher seeking 2 or 3 Type 3 patients or parents for an interview

Jennifer from the CDM Group would like to interview two or three VWD patients with type 3:We would…See More
Jul 20

Moderator
Johntheelder replied to Madere (dancermom)'s discussion A question from new member Bri
"I agree with suzee's response. Iron is both a blessing and a curse because the body needs it…"
Jul 12
 
 
 

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