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How You Can Help Spread the Word About LivingWithVWD.org
Started by Ben Munoz in General May 18. 0 Replies 0 Likes
Members and friends,We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communities. Without a doubt, we will one day be as large and active as our largest communities, …Continue
Twitter Chat
Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18. 2 Replies 0 Likes
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue
What would you do to comfort a sick friend?
Started by Armando Abrero in General May 9. 0 Replies 0 Likes
"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.I will be compiling…Continue
What Is von Willebrand Disease?
Started by John "JC" Colyer in General. Last reply by ninjamom Apr 29. 1 Reply 1 Like
Von Willebrand disease (VWD) is a bleeding disorder. It affects your blood's ability to clot. If your blood doesn't clot, you can have heavy, hard-to-stop bleeding after an injury. The bleeding can damage your internal organs. Rarely, the bleeding…Continue
Tags: Disease?, Willebrand, von, Is, What
Latest Activity
Armando Abrero posted a blog postFacebook Feature Supports Organ Donation
Ben Munoz's blog post was featuredMay 2012 LivingWithVWD Community Newsletter
Ben Munoz posted a blog postMay 2012 LivingWithVWD Community Newsletter
John "JC" Colyer commented on John "JC" Colyer's group Affirmations and QuotesAbout LivingWithVWD.org - Von Willebrands Disease
Welcome to Living with VWD.
The goal of this website is to help and provide support to people living with Von Willebrand's Disease, along with the families and friends of VWD patients.
Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical
1) Share your VWD story and experiences on the My Page tab
2) Use the forum section to ask questions
3) Keep others updated via the blog section
Disclaimer
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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Top Content
| 1 |
What Is von Willebrand Disease?Posted by John "JC" Colyer on April 1, 2012 |
| 2 |
When Sickness Strikes the Family – Caring for the ChildrenAdded by Armando Abrero on May 6, 2012 |
| 3 |
How You Can Help Spread the Word About LivingWithVWD.orgPosted by Ben Munoz on May 18, 2012 |
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Von Willebrand's Disease (Von Willebrand's Disease (VWD) - Online Support Groupc) - Online Support Group
New member says:
“Thank you! I am so happy I found this group!! I have tons of questions so there will likely be a ton of forums :) “
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"To Know the Joy of Giving"
Blog Posts
Facebook Feature Supports Organ Donation
Posted by Armando Abrero on May 28, 2012 at 8:33pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
May 2012 LivingWithVWD Community Newsletter
Posted by Ben Munoz on May 26, 2012 at 9:00am 0 Comments 0 Likes
Dear Friends and Family of LivingWithVWD,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities…
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