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If your family has been affected by Von Willebrand's Disease (VWD), consider Von Willebrand's Disease (VWD) Support Network your second home.
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Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.
There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of hereditary VWD: VWD Type I, VWD Type II and VWD III. Within the three inherited types of vWD there are various subtypes. Platelet type VWD is also an inherited condition.
VWD Type I is the most common type of the disorder and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds although there may be severe symptoms in some cases.
There are various factors that affect the presentation and severity of symptoms of vWD such as blood type.
Hello there my name is ashley and I'm new to the group. My son has been diagnosed with vwd. At his first appointment on Wednesday it was a fair bit to take in. They said he is borderline between type 1 and 2 so just waiting on the results of the…Continue
Hello everyone. I took my daughter to the gynecologist for heavy menstrual bleeding. Her Von Willebrands factor just came back 39 (should be over 50). Now looking back this is starting to all make sense. I have sooo many questions.Can motrin…Continue
hello, 20 years ago I was diagnosed with Von Willebrands in Canada. Now to make a long story short despite many issues when I found myself moving around the globe, I never got treatment of any kind and since leaving Canada I didn't need any kind of…Continue
I am a type III vWD, special category- acquired not hereditary, apparently my immune system attacks VWF with inhibitors and I lose all my VWF and factor VIII. Unfortunately my immune system has been very active the last three or so years so I have…Continue
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The goal of this site is to help and provide support to people affected by Von Willebrand's Disease, along with the families and friends.
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Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide peer-to-peer support and to enable you to make informed decisions about your health with the guidance of healthcare professionals.