Started by Halil Furkan Bektas in General Jan 5.
Started by grasshopper in General Jan 4.
Started by Ben Munoz in General Dec 19, 2011.
Started by erin hurley in General. Last reply by Arayah's Mommy Nov 29, 2011.
Started by John Stamler in General. Last reply by erin hurley Oct 28, 2011.
Posted by Ben Munoz on January 26, 2012 at 10:00am
Posted by Ben Munoz on January 26, 2012 at 10:00am
Posted by Ben Munoz on December 20, 2011 at 10:17pm
Posted by kda1989 on November 21, 2011 at 9:15pm
Posted by dianne remsen on October 7, 2011 at 10:20am
Welcome to Living with VWD.
The goal of this website is to help and provide support to people living with Von Willebrand's Disease, along with the families and friends of VWD patients.
Links to medical products helpful for VWD (DDAVP, Humate P & Amicar):
http://www.livingwithvwd.org/forum/topics/helpful-links-to-medical
1) Share your VWD story and experiences on the My Page tab
2) Use the forum section to ask questions
3) Keep others updated via the blog section
Disclaimer
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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January Community Newsletter: Need Your Suggestions and IdeasPosted by Rose Andrade on January 6, 2012 |
| 2 |
January 2012 Community NewsletterAdded by Ben Munoz on January 25, 2012 |
| 3 |
Low factor 8Posted by grasshopper on January 4, 2012 |
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Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.
Help us create more rare disease support communities for patients who need them.
How? By posting this link on your facebook page and emailing this link to your friends and family.
Please do not feel obligated to donate yourself. Your contribution and compassionate are more than enough thanks.
Campaign Link:
http://www.indiegogo.com/Bens-Friends-Builds-Support-Groups-for-Patients-With-Rare-Diseases
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
© 2012 Created by Ben Munoz.
