Von Willebrand's Disease (VWD) - Online Support Group


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What is Von Willebrand's Disease?

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.

VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.


draft of "Help, doctor, my daughter has VWD" with content!

Started by Johntheelder in General. Last reply by VWDgirl Nov 18. 5 Replies

First draft for journal article on VWDHelp! Doctor, my fourteen old daughter and I are totally depressed and our lives destroyed by von Willebrand’s disease. We have been to Hematologists, Emergency Room physicians and clinics but nothing seems to…Continue

Vwd type 2 bleeding

Started by Zoe in General. Last reply by Johntheelder Nov 18. 1 Reply

My nephew has type 2 vwd and suffers from nose bleeds l. He has a port a cath inserted under his skin and has his factor twice a weekm which prevents most bleeding from the nose however ford still suffer the odd nose bleeds.Recently he had a bleed…Continue

To Surgery or Not To Surgery (Long winded Question - Sorry)

Started by Meredith in General. Last reply by Zoe Nov 17. 7 Replies

My 3 1/2  year old boy has VWD Type 2B and has had frequent nose bleeds since he was 2yrs old (approximately every 4-10 days).  During this time he’s been to the ER twice for the nose bleeds. We’ve done everything recommended; including humidifiers,…Continue

Our stories are important. Please share yours!

Started by ModSupport in General Nov 13. 0 Replies

Ben's Friends is made possible by generous donors who help pay for the costs of maintaining our network. They share with us, and we would like to share your story with them. Post what Ben's Friends has meant to you!In your post, we'd love to hear a…Continue

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Johntheelder left a comment for Elizabeth Fernandez
"Elizabeth, welcome! I am glad you finally got good tests evaluated and the diagnosis resolved.…"

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Nov 20
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