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Permalink Reply by erin hurley on October 16, 2010 at 12:32pm

. My son has puedo papliedemia, they think. His retinas bleed from the increased ICP which his VWD just makes worse,they think. Our doctors can't or won't figure out what's wrong. His vision has gone from 20/20 to 425/450 to 450/350 in two years. It's so bad that we had to pull him out of school, he's only been in school 8 days this year. I'm so tired of dealing with different doctors that I'm tempted to forget Vegas & take him back to UCLA & refuse to leave.

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Permalink Reply by dianne remsen on October 26, 2011 at 10:57am

Dear John,

Sorry if I'm repeating myself, but, I have Mcaular degeneration in my right eye, due to VWD and possibly an inherited factor from my father, who also suffered it late in life.

 

Dianne

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Permalink Reply by erin hurley on October 27, 2011 at 8:48pm

My son has lost some of his vision too. His is due to retinal bleeding and papilledema, swelling of the optic nerve and disc. The selling is due to hydrocephaly and that is due to his AVM and aneurysm (both repaired).

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Permalink Reply by cancersux12 on February 6, 2012 at 11:47am

I just have severely dry eyes that hurt and burn like I have sand in them.

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