Von Willebrand Disease (VWD) - Online Support Group

Von Willebrand's Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

New members, start your experience here. Introduce yourself and share your story. Let us welcome you

General discussion for topics related to Living With VWD

Want to recommend a doctor, therapist, or clinic? Positive review only, please.

Having a rough day? We're here to listen.

Welcome to the Complementary Therapies forum! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with PsA. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. Treatment with medications is the only evidence-based treatment for Psoriatic Arthritis, but for some, treatment of the disease means more than medication alone - this is the place to discuss healing modalities that can complement medical treatment.

A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.

News from Bens Friends -

Events of Interest to VWD Patients. Just contact a mod to have your event listed. (all postings must be approved)

Discussion about this site, its organization, how it works, and how we can improve it.

Member Photos and albums

FAQ about the VWD Community

Bens Friends Apps for mobile Devices