I’m so sorry you’re all going through so much!
I can’t answer a lot of your questions, but I can say that I have had to have blood transfusions due to VWD (I have type 3) in the past.
In fact, without some serious medical intervention, I would just continuously bleed, all the time. I am happy to say I don’t have to worry about that aspect now, as I had a hysterectomy to stop the continuous flow. But that was me.
Before that, I had more than one life threatening bleed-out and had to go to the hospital and get transfusions.
I am unfamiliar with MGUS.
As you are dealing with Los Angeles, (I am from there, too!) I’ll say that I am a Kaiser member and so my doctors came from there. This was awhile back and so I don’t know Dr. Quon, but it’s good to get a specialist in VWD.
When you’re first diagnosed, that’s the hardest time, I think (well, right before was THE hardest time, for me!) but it’s when you’re trying to figure it all out. I hope the best for you, stamina and clarity of mind as you work through it all.
I will say that I’m doing very well now and try to be careful, of course, but have much more good days than worrisome ones. I say that as an encouragement to your situation.
I’m sorry I don’t know more about the other things.
Blessings on you