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Von Willebrand Disease (VWD) - Online Support Group

VWD and sodium

Is there any correlation between von Willebrand disease and abnormal sodium levels?

For as long as I can remember, I have always battled sodium issues. I remember when I was active in athletics in high school, for instance, and I used to drink 3-4 times as much water or Gatorade (or whatever was available) as other athletes. Over and over again my coaches said I was most probably diabetic. I was tested for diabetes a multiplicity of times. The results always came back negative.

I’m still battling the same sodium issues at 50 years of age. My face and extremities are regularly puffy. My primary doctor (internal medicine specialist) has prescribed triamterene and hydrochlorothiazide for water retention, but they don’t seem to make a lot of difference.

Thanks for all replies!

Interesting question. My daughter frequently would go pale and nearly pass out after tae kwon do during the standing following the workout. We had her tested multiple times at the doctor and they said her sodium was low. It was a couple of years later that they finally figured out VWD.

So do a lot of VWD suffer with low blood pressure and problems with sodium

Thanks for the info smcox and Laurelle. Glad to know I’m not the only one experiencing these issues.

I also always have low blood pressure, I figure out I add salt to some meals and I drink smart water that has potassium and other good things without drinking gatorade